THE invisible DISEASE - Chronic Fatigue Syndrome

My name is Barbara and I have had Chronic Fatigue Syndrome for 18 years. Because I have found so many websites that are very outdated or links that are no longer working, I decided to try to put together a website that would contain daily news, current research information, positive personal stories, some humor and more. My website can be found at http://www.cfs-info.c.... I believe we are all in this together and the more we know about our illness, the better we can deal with it. Please visit my site when you feel up to it, sign the guest book and leave feedback. I also have a message board with several friendly people sharing their stories. I'd love for others to join us.

I also have put up a link for others to help them find members of this board near them.

I sell nothing. I've done this to hopefully be able to help others.

Barbara

Hello Again

It is with great excitement and joy that we announce the NEW and SIMPLIFIED THE invisible DISEASE website ? Chronic Fatigue Syndrome/CFIDS/ME at http://www.cfs-info.c....

With new information coming to us from all over the world, sometimes on a daily basis, we decided that our website needed to be more easily accessible for everyone. In addition, there were so many different topics that we wanted to provide for you ? ways to deal with chronic illness, articles from those who have found a way to turn a negative into a positive, adding a little humor to your day, help you find support groups in your area, places to find disability information and a place to blog your thoughts and feelings, that my dear friends Minnie Juhl and Cookie Monsta offered to work on a completely new website for us.

What we now have is a website that provides some special extra features. By registering as a member of the website, you will receive your own personal blog. You can create something personal just for yourself or adjust the settings to share your thoughts with other members. In addition we now have provided a listing of our entire membership community. That will allow you to communicate with others if you wish.

Our message board has a new look too. It?s brighter and more inviting. Please stop by and have a look. It doesn?t just deal with our struggles with being sick, it includes discussions about your interests, words of encouragement, odd news of the day and just chit and chat. We have a small group of participants and would welcome your input in our discussions. Sometimes we are serious, sometimes we support others, and sometimes we just try to have a good laugh.

As we always have since the day this site launched, we will continue to search for news, research and information that we all need to know. Communication is essential and we welcome any suggestions or input you may have. Please contact us if we can help in anyway.

Our lives are made up of many different parts. Having a chronic illness only defines one part of us, but we are so much more. With this site we hope to encourage you to be all that you are.

Thank you so much for your kind words Jeniene. This is an incredible time for those of us with CFS. The awareness campaign from the CDC has given hope to so many who have heard "but you don't look sick" over and over.

Educating both the public and the medical community needs to come from all sources. With education comes acceptance and understanding and we deserve that in huge amounts.

I hope you will stop by and join our messageboard. The link is http://www.cfs-info.c....

Barbara